Dear Amelia,
I look at you and feel such pride, I still find it hard to believe that your my awesome little girl. What did I do to deserve such a brave, amazing, gorgeous little girl like you? And yet I still feel a huge amount of sorrow and guilt when I look into your bright blue eyes. I have accepted your condition and embraced it, lighthearted blogs, information and research has made this easy for me to accept. However how can I accept something like this so easily when it's you that has to live with it...
Your wobbly gene means that you will be monitored for the rest of your life, we don't know how you will react when you cannot have steak, chicken or fish... I'm interested to see what your food will be like at your wedding (if you decide to get married of course) will your partner have PKU? Will you rebel and sneak a mars bar when no one is looking... Will you feel guilty will it make you poorly... I want to protect you but I can't stop you living.
I love your smile, your growls, your beauty and character even after week after week of blood tests, the monitoring, the anxious wait we go through just to know your levels are in range... The longing for your milestones to be reached, for you to remain a positive, playful and funny little girl as you grow and your journey is set.
I love how we are learning this with you and as we watch you grow and my little baby turns into a little girl, how we will adapt so it isn't no you can't have chocolate, but here have this chocolate instead... But I'm sorry you still cannot have the steak, chicken or fish.
You are my gorgeous girl, yes you have PKU but without it you wouldn't be you, it does not limit you, it does not define you, you are awesome because you are you! And I will love, support and stand by you as we start this interesting and sometimes challenging journey together... I understand if you want to cry and shout that it's not fair, I'll understand when you yell that you hate me when I say no you cannot have steak and chips for tea as I will know deep down its for your own good, deep down you'll know that too...
I hope you will remain the strong funny character that you are already and if you decide you want to try something on the "forbidden" list you'll come to me first, I want you to experience freedom but I want you to be safe... Your my awesome little girl and I look forward to watching you grow and prove that PKU are just three little letters and that you are far bigger and better than PKU will ever be... You have no limits, you are amazing, you are Amelia and nothing will change that.
Love forever and always
Your proud mummy and daddy
Xx
🍏🍎🍐🍊🍋🍌🍉🍇🍓🍈🍒🍑🍍🍅🍆🌶🌽🍋🍊🍐🍎🍉🍇
